Board of Directors:

Susan A. Brookes
Christine J. Hunter AM
Annette C. Leggo BSc
Simon R. Molesworth AO QC

Medical Adviser:

Dr Michael M. Barratt,
MB, BS(Syd), FRCPA

Educational Adviser:

Maureen A. Stephenson, BA
Dip School Admin, MACE

Alison Hunter Picture

Sydney Morning Herald
Medical Editor:
Julie Robotham.
"Alison was suffering terrible physical distress compounded by insults and inhumanity" Read article.

 

 

Charles Darwin film "Creation"
Dedicated to Alison Hunter, Emily Chapman, Jenny Hill, Tracey Ash, Casey Fero, and Sophia Mirza and all those whose lives have been devastated by chronic post infection diseases. Read more.

Neurological disorder – ICD 10, G.93.3
World Health Organisation (WHO) 1969

Priority 1 Disease of Public Health Importance
Centers for Disease Control(CDC) 1997

ME/CFS is a broad diagnosis which includes clinical syndromes linked to known infectious agents including Ross River virus, Epstein Barr virus, Q fever, Lyme disease, Parvovirus B19 and toxic exposures such as organophosphates. These syndromes are characterized by neurological, gastrointestinal, cardiovascular and myoarthralgic symptoms. Severe forms can present with paresis, seizures, intractable savage headache, and life threatening complications.

The renaming to chronic fatigue syndrome in 1988, giving misplaced emphasis to "fatigue", trivialises the substantial disability of ME/CFS which can extend to the wheelchair or bedbound, requiring 24 hour care.

Strong evidence is accumulating for the role of infection, immune dysregulation and genetic predisposition.

Latest News:

Chronic Fatigue Syndrome Study
University of Sydney Participants required in a study investigating whether tick borne infections may contribute to the symptomology of CFS.
READ MORE HERE.

attentionIACFS Publication: Harms Associated with Graded Exercise and CBT. Tom Kindlon - Irish ME/CFS Association

Invest in ME Conference 2012 DVD Order.

Invest in ME - "Lost Voices" Book Order.

Dr Eleanor Stein - Self Help Manual.

Dr Vallings - CFS/ME: Symptoms, Diagnosis, Management

Read:
ME/CFS Primer for Clinical Practioners.

"Disease is very old and nothing about it has changed. It is we who change as we learn to recognise what was formerly imperceptible."
-

 

 

 

eMedical Site Rating: 4 stars.

Alison Hunter Memorial Foundation
PO Box 6132 North Sydney 2059 Australia
Phone/Fax +61 2 9958 6285

Home
About Us
About ME/CFS
Severity
Advocacy
Research
Guidelines
Conferences
Medical Politics
Media
Archives
Links
Donations
Books