About the Foundation

Mission - To reduce the impact in the community of the disease Mylagic Encephalomyelitis/ Chronic Fatigue Syndrome.

The Alison Hunter Memorial Foundation was established in 1998 through the initiative of the Public Interest Advocacy Centre, and The Public Interest Law Clearing House as a project of the law firm Minter Ellison.

The Foundation is an enduring memorial to Alison Hunter and all those whose lives have been devastated by ME/CFS. Alison died in 1996, aged 19, from complications arising from ME/CFS which included seizures, paralysis, gastrointestinal paresis and overwhelming infection resembling Behcets Disease. Such complications are rare and only present in a severe subgroup. Alison courageously fought ME/CFS for ten years and was an unstinting advocate for young people.

alison_hunter pictureAlison was the founding president of ME Young Adults (MEYA), established in 1992 at Royal North Shore Hospital, Sydney.

"It is imperative that children and adolescents with ME be empowered with decisions regarding their own health and capabilities. "
- Alison Hunter -
International Meeting on Chronic Fatigue Syndrome
18–20 May 1994 Dublin, Ireland

"Even the most understanding doctor becomes frustrated when tests repeatedly come back 'normal'. They cannot give us a pill to make it (and us) go away, and worsening health drives us back again and again in desperation to ask "Doctor, can't you do something??".
- Alison Hunter -
Forget M.E. Not, an article written in September 1993.


"Creation" - This film about Charles Darwin is dedicated to Alison Hunter, Emily Chapman, Jenny Hill, Tracey Ash, Casey Fero and Sophia Mirza. Read more.


The Alison Hunter Memorial Foundation is a non-profit institution. The Foundation works independently in a spirit of support and cooperation with all researchers, institutions and ME/CFS societies to advance scientific knowledge and medical care.
The Foundation received The Special Service Award at the 2004 IACFS/ME Conference, Madison, Wisconsin USA.

Alison Hunter Memorial Foundation Limited
ABN 98 085 075 305

Australian Taxation Office-endorsed deductible gift recipient

Contact details

PO Box 6132

Telephone/Fax +61 2 9958 6285


Alison Hunter Memorial Foundation
PO Box 6132 North Sydney 2059 Australia
Phone/Fax +61 2 9958 6285


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