Betrayal of the Severely Ill?
Appendix 13: Letter from the SA ME/CFS Society to the RACP Working Group
ME/Chronic Fatigue Syndrome Society (SA) Inc
GPO Box 383,
South Australia 5001
President Fax (08) 8373 3379
Information & Counselling (08) 8266 5833
17 April 1998
To: Members of the RACP Working Group on Clinical Guidelines for Chronic Fatigue Syndrome.
I am writing to you in support of the accompanying submission from Christine Hunter of the Alison Hunter Foundation.
On behalf of the ME/CFS Society (SA) Inc, I ask you to consider very carefully the matters raised in her letter.
In particular I would ask that the final Guidelines document should give more information about the severe end of the CFS spectrum. Since becoming President of this state society recently, I have personally become more aware of some of the severely ill CFS sufferers in South Australia. I am concerned that there is a tendency to overlook them because they are bedbound or hospitalised and not able to be as vocal or active as other sufferers.
Significant charnges to the first Draft have been requested by many of those who have responded to it. In our own response, we have aleady asked that a further draft be released for public scrutiny before final publication. I urge you to support this, and draw your attention again to the opening paragraphs of Christine Hunter's letter.
Your careful consideration of these matters will have a far-reaching effect on the lives of many thousands of Australians affected by Chronic Fatigue Syndrome.
Return to the AHMF Letter to the RACP.
Alison Hunter Memorial Foundation
PO Box 6132 North Sydney 2059 Australia
Phone/Fax +61 2 9958 6285
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