RACP Guidelines for CFS

An Educator's Response to CFS Guidelines Revised Draft 2001
Maureen A. Stephenson

1.0 PRESENTATION AND FORMAT

1.1 Areas of Concern

1.2 Recommendations

2.0 CONTENT

2.1 The document is characterised in the main by unfortunate and inappropriate imbalances including:

2.2 Recommendations

3.0 TO CONCLUDE

3.1 Today, both medical personnel and their patients have quick access to worldwide information via the internet and are, understandably, quick to identify bias, omissions and filtering of information.

3.2 In today's social climate input from clients (be they consumers, patients, shareholders) is considered a legal right and because of its practical and empirical nature, an important part of any guidelines document.

3.3 Today's society perceives reality in terms of both qualitative and quantitative research with an emphasis on client (ie. patient) experience. By contrast, medicine's sole emphasis on an evidence-based approach appears out-of-touch with reality. A Guidelines document on any medical condition needs to pursue balance rather than create division.

3.4 There is a considerable amount of literature available to support the most disempowered CFS group – children and adolescents – and their carers and teachers. It is recommended that availability of this material be included in the Guidelines, including contact details.

3.5 Wise doctors and patients living with CFS would acknowledge that the most productive patient ¤ doctor relationship is based on 2-way dialogue, each learning from the other. The Guidelines Draft fails to adequately encapsulate the spirit of this relationship and its potential.

3.6 No medico is an island. No medical writing team can ignore the diversity of worldwide research into CFS and expect credibility.

3.7 Thank you for the opportunity to comment on what it is hoped is "Revised Draft 2" (title page) and not "this final version" (page 64).

Maureen A. Stephenson
Educational Adviser
Alison Hunter Memorial Foundation

 

Alison Hunter Memorial Foundation
PO Box 6132 North Sydney 2059 Australia
Phone/Fax +61 2 9958 6285

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